We are facing it again – the illness of a loved one – my family kicked in to an oddly known pattern, following a phonecall… bad news… information…response…. we gather in Scotland. We talk and speculate, we have terrible gallows humour about the grimness of the situation. We crumple. We recover. We hold each other. We separate and stay in touch – messages, phonecalls – we manage the conversations – medical, social, relatives, practical. It runs as it needs to – a strange stream – not a linear pathway – not a torrent of a river, but a small, determined stream, bubbling in a mostly-predictable direction – with sudden bursts of flow and then back to something steady.
I find myself slightly annoyed with the familiarity of it. Having been through something similar with Dad, this feels like de ja vu. The crappiest roller coaster in the park. I hated it first time round. This time it’s no party either, but somehow I have a sense of “ok… this is how this goes…” so somehow even the unpredictable parts are … partially expected. And somehow that saddens me more….That I can feel resigned and stoic. That I’m not raging against the dying of the light in the way I did before.
Emotions are complex beasts.
And in the midst of familiarity, I experience my own change, my own learning, the unfamiliar shifts in my responses. Where once I was laid flat by how I felt– worried and frightened and small and furious – I find I can now stand in the maelstrom a little better. It gets a little wobbly, but I’m definitely more upright…. Where once I ignored that I was completely flattened and attempted to crawl on regardless…I find I can’t do that now… I’m not prepared to do that now…
Whilst I’d still prefer not to be on the floor, I recognise that sometimes sitting there is right. I need to stop. To take stock. To write. To articulate: I feel this. It is this way for me. I’m struggling/ I’m surprisingly ok/ I need X – and then less is pinning me down… and I can stand… and walk outside and breathe.
In all of this, I have a sense of coming face to face with my mortality – turns out I don’t ACTUALLY have super powers. The irony of the upcoming Wonder Woman movie is not lost one me – I’m seeing her everywhere & I so love some of what she represents… and still, I don’t have super powers… This is old news… but it still never ceases to surprise me. My mode of being is one where I can affect change, I can create conversations, take action, have a plan B… in the world I create for myself, I have agency most of the time…
But in a situation where someone you love is dying, you have no agency. You can’t DO a damn thing. Circumstance dictates. Your phone becomes your friend and foe. The ringing brings a second of dread – what news? You are beholden.
These are lessons well learned…and I’m truculently thankful for them.
And in the face of no agency, I still need to feel I can choose. So I choose to continue working, to do good stuff that gives me pleasure and purpose – and to be realistic about what that means. And I choose to go do stuff that feels good – I choose to live, in the face of the alternative choice I think “live” is a good one. I choose to drive 4 hours for a visitation that is rationally pointless, but needed and nurturing. I choose to design team days that enable joy, creativity and thought-provocation and I choose to put stuff around me so I can deliver those well, and still be here and clear – and rest myself a bit after.
I choose who to talk to .. sometimes steering clear of folk who might help…or who might open me up – because I need to be not-open to function for a bit. I choose to lock down a little. I choose easy books and kids movies…I choose not to get political. I choose no sudden moves. I choose to go gently where I can.
You do what you do to get through. To survive and thrive.
I choose these things because I don’t want this to be the only thing. The arresting thing. The defining thing. The sole focus.
It’s the only way I know how to stay more upright.
Picture: Human condition by T Storm Halvorsen